so.
i may have a vestibular disorder. nice.
it may be called 'Meniere's Disease'. even better.
it may require surgery. the hits keep coming.
i may never be able to play drums again.
but enough about me.
and,
lets review.
someone said they make music because they have to, i can see that though its amusing. i have always found composing/playing as a catharsis/therapy. i forget what catharsis means right now. but, if we take this theory of creating art as a need, then what do you do if its physically taken from you. its not a question.
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7 comments:
What kind of surgery are you talking about?
I too have been diagnosed with Meniere's Disease but my doctor has never mentioned surgery as an option.
Thanks!
hi russell.
i dont know who you are and maybe you just stumbled here.
i dont know what i have, so my post is speculation at best. i do know a few things, and one of them, contains a fear that they may need to operate.
i wont know anything until the tests are done, and i guess, well, from what ive read, im terrified. i tend to dwell on worst case scenarios.
tell me about your experiences, if you dont mind.
will.
Will,
yes I just stumbled across this page. If you'd rather me contact you through your myspace page, just let me know.
Basically, I've had some hearing problems in my right ear. My family Dr. says it's fluid build up. And usually it gets a little better after I take Sudafed.
My ear Dr. says I have Meniere's although I "don't have all of the symptoms". I have had 3 injections (yes, shots) in my eardrum. My hearing improved a great deal shortly afterwards.
I'm currently on medication for Meniere's but if there's low risk surgery available I'd like to consider that option.
Russell
i dont do myspace, so this is cool.
i had that ENG test done. that was something, but before i did the test they cleaned my ears and found tubes 'laying around' in wax, doing nothing. know these tubes were inserted in 1982.
heres another little nugget, both my ear drums are completely retracted.
so im off to ENT doc today. need antibiotics to clean out some things and may need surgery and/or, get this, tubes inserted. ha! plus the doc says my ears probably arent the reason i stumble around losing balance.
anyway, its nice to converse with someone who knows. this sucks, man.
will.
Hello Will,
I've got another appointment with my ENT next month. Maybe I'll finally get some good news.
The worst thing for me is the noise in my right ear.
It's a constant low hum. Almost like an appliance motor running in the background.
I've already had an MRI so a tumor has been ruled out. That may sound like good news but actually it's not.
From what the Dr. told me, if a tumor is the problem it's always a small benign one and after it's removed everything is back to normal again.
I've been trying to find info on the web, unfortunately there's a lot of inconsistency from site to site.
I did have a little relief last month. For about two solid weeks, my hearing in both ears was the same (my right is usually at a lower volume) and there was no humming). Of course the noise I hear is called "tinnitus".
I reall want some relief so I can enjoy listening to music again.
Kepp me posted.
Russell
you keep me posted too.
you have a blog? its nice to talk to someone with similar issues like ours.
if you do have a blog, id like to link to it.
thanks and good luck, russell. keep in touch.
Will,
I don't have a blog so if it's ok with you we'll just post here.
A brief bit of info about myself-
I'm 44 years old, live in South Carolina.
I had tubes put in my ears twice when I was about 9 or 10 (1972).
No problems since then until about 1987 or 88. I had sudden partial loss of hearing in my right ear.
Went to the doc that did the tubes so many years earlier and he couldn't find anything wrong.
Hearing got better a few days later.
Started having the same type of problem last year.
My family doctor said I had fluid build up in my ear. Gave me some allergy medication. Problem fixed...or so I thought. About a month later same problem again. Allergy meds didn't help this time.
Original ear doc said I had nerve damage. Needed shots in ear. Scared the hell out of me!
Got a second opinion and was basically told the same thing.
Had three injection in my eardrum(one per week) of some type of steroid. Hearing got a lot better, then I got an ear infection so bad that my eardrum ruptured. Luckily, the eardrum heals pretty fast.
Had the sensation of fluid in my ear again. Tried non-drowsy Sudafed. Hearing was almost perfect!!! Doc tested my hearing again and said it was the best that it's been since I started going to him. He didn't comment on the Sudafed.
I've read a lot about Meniere's disease lately and most of the stuff I've found has not even been mentioned by my doc.
I've got a LOT of questions for him next month.
Here's a link for you to try, maybe you'll get some useful info from it.
http://deafness.about.com/od/diseasesandsyndromes/a/menieresdisease.htm
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